Day 2 tapering off prednisolonone : 25 mg (5 pills)
Woke up later than usual. Apa lagi, Suami purposely woke me up late! Of course, he did it because he felt that I needed the sleep!
Suami had PIBG meeting today.
Amzar in Nilai this weekend for an activity & Aiman had Carnival Day to raise $. His class was going to sell Domino's pizza!
So, went to TS Hospital with Durrah as my companion :)
We set out a bit late from home & so by the time we got there it was already 9.30am & had to park at the visitors 2nd level parking area. But, actually, it's better than the normal place we parked. Each lot is big & there were ample spaces available. Of course we had to walk a bit, but it was OK.
We were than scanned at the entrance. Today, it was round blue labels :)
The place was rather crowded than weekdays. However, as usual, it didn't take long. Durrah said I had 25 needles altogether. One number up than the last time! However, when the good doctor poked 2 needles on my right leg, I could feel a surge like an electrical shock being passed into my nerve. Maybe it had something to do with the muscle pain I was having this morning, due to the slight fall I had yesterday on my way towards the parking lot at work.
As usual, once done I would just get out of KL quickly before the jam.
As a token of my appreciation to Durrah, treated her to big breakfast at Bangsar Village, then to MPH for her to spend her $. She bought the novel INKHEART.
I really have to be careful. She didn't do so well in her Penulisan BM in the last exam!
After breakfast I took my 5x5mg (i.e. 25mg) Prednisolone, ie this would be my 2nd day of cutting down the steroid which had been in my body FAR too long!
Bought different types of vegetables at the grocer. I now heaped my plate with vegetables :)
I had to watch the blood glucose.
When we arrived home, woke T.Mak up for a lunch of take away Nando's. The lemon & herbs flavor with it's fries, mediterranean rice, cole slaw & salad actually is rather similar to something one could buy at the foodcourt in the Hilton's Complex in front of Masjidil Haram! \
So, now you know why I loved Nando's :)
My blood pressure was on the low side (compared to the recent weeks).
So, I only took half of the Myacardis.
Deep down, I was hoping that my test-tube body was on its way of getting back to normal, InsyaAllah.
I took time after lunch to re-organize the blog.
Had it really been 43 days since the onset of Bell's Palsy?
I hope people do realize that the entries were written later than the events, themselves. I relied on sms in my phone for facts/notes. Unfortunately, those notes were gone when the phone kena air.
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Saturday, July 4, 2009
BP42 - 3 JULAI 2009 - JUMAAT
In my blurry state of mind (macam dalam pantang) I agreed to lunch with a few girl frineds from Chico at a Chinese Muslim restaurant in KJ... when actually:
a) it was my duty to send Durrah to school (school starts at 2 pm on Fridays) &
b) there's also one of my more important appointment with ProfKJG of UMMC at 2pm!
The last time I saw him was way back in June.
Kena buat clone!
Well, told Suami I just had to make sure that I get to UMMC before the clinic closed. Certainly wouldn't want to miss this particular appointment.
There was also the driving, because with my blurry right eye, driving in unfamiliar territory would be BAD!
Luckily, Saadah was back but she had to go ASM after lunch.
Like I told Nina "sempat tak sempat... kita sempatkan aja..."
So, the arrangement was for me to sedn Durrah very early to school... then Nina & I would get a ride from Saadah. Suami would pick us up after lunch to send us to UMMC. Nina would get her way back from there.
Kiah, Yusri & Yam had their lunch already when we got there. Umi couldn't make it due to her younger sister pulang ke rahmatullah.
Al Fatihah!
Topics of conversation was on status of health (mine, Rahman's, Yam's, Saadah's & our parents ) + health food + Michael Jackson + former Chico's Charlie's angel is now "an Amirah" (KEEP UP THE GOOD WORK) + etc.
Kiah, Yusri & Nina are healthy, Alhamdulillah!
It was such a short lunch, so maybe Kiah will organize another one maybe next month, huh?
Saadah dropped me at UMMC & after I registered myself, I went to my favourite surau in UMMC, up at the 5th floor!
My number was still not up when I got back down to the clinic at level 1.
Then, my number was flashed but I was assigned another doctor.
Noo... I wanted to see Prof KJG, so that there would be continuity. When I told that to the ladies at the registration table, I was told that I should had requested.
Then, I saw Prof KJG coming out of his no. 35 room. After I told him of my case he went lover to room no. 32 to get my file though of course he politely told me that I could also see the other doctor & that she's a very good doctor, etc.
Anyway, I just had to wait some more because there were others ahead of me to see him. I ended up getting to know the lady who was to see him before me: a Parkinson's Disease patient.
ProfKJG told me to taper off my steroid intake:
So, from 40mg (which I actually had done for a week, under suggestion of DrTS) I should be doing:
30mg (6 pills) for 2 days then
20mg (4 pills) for 2 days then
15mg (3 pills) for 2 days then
10mg (2 pills) for 2 days then
5mg (1 pill) for 2 days
before stopping for good.
Well, that morning I dah taken 5 pills (25mg) & I thought I would take the other 3 pills (15mg) after dinner.
I decided, well since this steroid was an unfriendly alien in my body... I would just go ahead & stopped my tapering off at 5 pills (25mg), ie 5 mg less than what was being suggested by ProfKJG :)
Prof KJG told me that I had another 30-40% more to fully recover.
I told him, "It doesn't really matter. I'll continue as as I have. After all I've organized 2 half-day seminar for the program post-grad students this week & last week I was attending a conference :)"
I was so delighted by the news that I could taper off the steroid... I was about to walk back to the department! Af course it was too far & luckily a taxi was willing to take me. Did some work at the office & went back late for the first time since I got the Bell's Palsy.
Unfortunately, the day had been long & for my current condition the activities were more than I could handle (?).
As I wss walking to the car which I parked up front... I took a wrong step & fell. Scratched my right knee :(
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EVEN THE SUN & THE EARTH DON'T LAST FOREVER... Dust in the wind...
http://www.youtube.com/watch?v=2DSKHZ1TcZE
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BP31-->35 - (22-->26 JUN 2009) : ISNIN -->JUMAAT
For the first time I skipped my facial electrotherapy Monday morning session at UMMC. Instead, I was boarding the LRT from Taman Jaya after parking BFX at the last slot in the parking area. No place to sit, but luckily I was at a corner & so I could lean a bit.
I was on my way to KLCC Convention Center to attend the 14th ICOT!
Did on the spot registration because it seemed the online registration I did on Friday did not go through. After quickly sampling the snacks available, I went straight to Plenary Hall for the keynote speaker by Gardner (to be followed by the opening Ceremony).
Surprise... surprise... guess who happened to be at the door 'receiving' me. THE CONVENOR of the conference, Net's sister, herself!
The next surprise... as I was walking up the aisle, trying to get a seat... someone called up my name. It was Hazami, a close friend. Ada gang!
So, that's what I did for the next 5 days, except for Tuesday.
I'd be in Plenary Hall for the keynote speakers at 9am & I normally stayed on till late afternoon. Lunch was provided.
It was rather tiring, especially on days that I didn't get a seat in LRT... but the fact that I got to be in attendance & listening to individuals like Buzan & de Bono was well worth it.
Net's sister & her committee member did very well! They bid to be the host all the way in 2005! I cringed at *the challenges they had to face to manage an event of this size with big local & international names.
*2 small examples that happened right in front of my eyes:
a) A participant from Indonesia complaining to the convenor the fact that the organizer failed to supply face masks to each participant (in reference to the H1N1). Convenor looked frazzled... but, I thought the guy had a point!
b) A local speaker complaining that she felt very dissappointed that at an event billed as 'a workshop', it did not take place as her expectation about what a workshop should be. Exasperated convenor said something about 'one couldn't actually dictate these big names & 'workshop' could mean differently to individuals of different background'. Good answer :)
During the closing ceremony, there was a standing ovation for her & lots of accolades. Net's sister, the convenor, was all teary eyed & surely very thankful that she's passing on the baton to the next convenor, another lady, for the 15th ICOT in 2011 to be held in Belfast.
On Tuesday, I was at the department for 2 meetings -- agihan projek penyelidikan called by Yati & a Buku Panduan meeting for coordinators. I missed the talk by TunM. He was the main speaker for Tuesday.
On that day, I forced Zulfa & Amzari to use my pass to go. It was actually a conference for their kind of work & I wanted them to have a feel of attending a big conference.
I was very grateful that I was given the rezeki to attend a talk & get to know a couple who for the past 6 years had taken care their eldest son who had brain injury. I shared my experience at the session. We also discussed about the lack of support group available & I volunteered myself to be part of the association that they are going to form. Most probably, I would invite someone from their group for my Diseases of the Nervous System. I had also urged them to write a book of whatever aspect of their experience that they wanted to share with the public.
Of course another big news is the death of Michael Jackson @ Mikaeel (There were reports that he converted to Islam in November 2008).
Al Fatihah.
However, there are also some write ups against this news.
http://trueslant.com/alieteraz/2009/06/26/was-michael-jackson-muslim-and-his-islamic-burial/
I also 'grew up' with Michael Jackson's songs, especially when I was studying in Chico. Song like "She's Out Of My Life" will forever be stuck in my mind... Saadah you almost drove me crazy playing that song over & over again!
*******************************************
a href="http://www.youtube.com/watch?v=BD5tqRqkWCI&feature=related">
*******************************************<
I was on my way to KLCC Convention Center to attend the 14th ICOT!
Did on the spot registration because it seemed the online registration I did on Friday did not go through. After quickly sampling the snacks available, I went straight to Plenary Hall for the keynote speaker by Gardner (to be followed by the opening Ceremony).
Surprise... surprise... guess who happened to be at the door 'receiving' me. THE CONVENOR of the conference, Net's sister, herself!
The next surprise... as I was walking up the aisle, trying to get a seat... someone called up my name. It was Hazami, a close friend. Ada gang!
So, that's what I did for the next 5 days, except for Tuesday.
I'd be in Plenary Hall for the keynote speakers at 9am & I normally stayed on till late afternoon. Lunch was provided.
It was rather tiring, especially on days that I didn't get a seat in LRT... but the fact that I got to be in attendance & listening to individuals like Buzan & de Bono was well worth it.
Net's sister & her committee member did very well! They bid to be the host all the way in 2005! I cringed at *the challenges they had to face to manage an event of this size with big local & international names.
*2 small examples that happened right in front of my eyes:
a) A participant from Indonesia complaining to the convenor the fact that the organizer failed to supply face masks to each participant (in reference to the H1N1). Convenor looked frazzled... but, I thought the guy had a point!
b) A local speaker complaining that she felt very dissappointed that at an event billed as 'a workshop', it did not take place as her expectation about what a workshop should be. Exasperated convenor said something about 'one couldn't actually dictate these big names & 'workshop' could mean differently to individuals of different background'. Good answer :)
During the closing ceremony, there was a standing ovation for her & lots of accolades. Net's sister, the convenor, was all teary eyed & surely very thankful that she's passing on the baton to the next convenor, another lady, for the 15th ICOT in 2011 to be held in Belfast.
On Tuesday, I was at the department for 2 meetings -- agihan projek penyelidikan called by Yati & a Buku Panduan meeting for coordinators. I missed the talk by TunM. He was the main speaker for Tuesday.
On that day, I forced Zulfa & Amzari to use my pass to go. It was actually a conference for their kind of work & I wanted them to have a feel of attending a big conference.
I was very grateful that I was given the rezeki to attend a talk & get to know a couple who for the past 6 years had taken care their eldest son who had brain injury. I shared my experience at the session. We also discussed about the lack of support group available & I volunteered myself to be part of the association that they are going to form. Most probably, I would invite someone from their group for my Diseases of the Nervous System. I had also urged them to write a book of whatever aspect of their experience that they wanted to share with the public.
Of course another big news is the death of Michael Jackson @ Mikaeel (There were reports that he converted to Islam in November 2008).
Al Fatihah.
However, there are also some write ups against this news.
http://trueslant.com/alieteraz/2009/06/26/was-michael-jackson-muslim-and-his-islamic-burial/
I also 'grew up' with Michael Jackson's songs, especially when I was studying in Chico. Song like "She's Out Of My Life" will forever be stuck in my mind... Saadah you almost drove me crazy playing that song over & over again!
*******************************************
a href="http://www.youtube.com/watch?v=BD5tqRqkWCI&feature=related">
*******************************************<
BP22 - 13 JUN 2009 : SABTU
Went to TS Hospital with husband since I planned to attend ICOT next week. This was the first time that I went for an acupuncture session on a Saturday.
As we came in at teh door, body temperature was checked. A small yellow round sticker was put on each of our clothing to indicate that we passed the test :)
There were many people & both of us thought we were in for a long wait.
Yet, just as I was about to sit at the waiting area in fron of Room 120, a nurse waived to me & asked me to come in to a 3 beds room. There were already 2 elederly Chinese ladies & so I became the 3rd person!
Rezeki, Alhamdullillah :)
However, Suami was not allowed to come in.
We went out of KL straight away & headed to Bangsar Village for breakfast at one of the cafe located within the grocery store. 2 big breakfasts :)
As we came in at teh door, body temperature was checked. A small yellow round sticker was put on each of our clothing to indicate that we passed the test :)
There were many people & both of us thought we were in for a long wait.
Yet, just as I was about to sit at the waiting area in fron of Room 120, a nurse waived to me & asked me to come in to a 3 beds room. There were already 2 elederly Chinese ladies & so I became the 3rd person!
Rezeki, Alhamdullillah :)
However, Suami was not allowed to come in.
We went out of KL straight away & headed to Bangsar Village for breakfast at one of the cafe located within the grocery store. 2 big breakfasts :)
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